working together to conquer lupus

About the Lupus Society (BC Lupus Society)

Our Mission

To provide education and support to people affected by lupus; to create awareness of lupus; and to support advances in the treatment and research.

Our Vision

· To be the primary resource centre for people affected by lupus and for health care professionals

· To ensure community based support networks and services

· That early diagnosis and optimal treatment will be available to everyone with lupus

· That the public, at large, will be aware of lupus

Who We Are

The BC Lupus Society is a volunteer, community based, non-profit society.

Our start was in 1977 when a group of lupus patients, with the support of three rheumatologists formed a support group known as the Lupus Erythematosus Group (L.E.G.), under the umbrella of the Arthritis Society.  In 1980 the name was changed to the BC Lupus Association and in 1993 the group was incorporated as an official non-profit society in accordance with the Society Act, and the name was changed to the BC Lupus Society.

Our current status allows for more flexibility in endeavours to fund the continued development and implementation of our support services. At the same time, it allows for ongoing links and partnerships with the medical community and other disease-specific organizations.

There are many dedicated volunteers throughout the province. Their continued dedication, enthusiasm, and support is integral to the success of the BC Lupus Society. Currently there is 1 Chapter, 10 support groups and 41 contact people throughout the province who:

· Provide information and support to those in their communities

· Actively participate in public awareness campaigns

· Initiate fundraising efforts

As well, there are a number of other valued and active volunteers who generously donate their time and effort on various ongoing and/or one-time-only special projects.

The Board of Directors is comprised of eight to ten volunteers, who are elected into their position at the Annual General meeting. Their responsibilities and activities include:

· Attending monthly Board meetings

· Reviewing and assessing the needs of the BC Lupus Society membership

· Sourcing, researching, developing and implementing programs and services to best fulfill these needs

· Continue to develop and maintain a close partnership in the ongoing expansion of lupus research programs within BC and Canada

· Initiate fundraising activities and grant application funding

· Liaise with the medical community and government regarding advocacy and education

· Liaise with Lupus Canada and assist in the development of national programs and campaigns