What We Do
Education
Education
Hosting the annual Symposium for the broader lupus community including patients, caregivers and health care professionals.
Distribution of an e-newsletter
Distribution of information packages, books and videos.
Maintaining a current library of pamphlets, books, videos and articles.
Networking with international lupus organizations for the purpose of sharing updated and significant information.
Sustaining a website database with information from world renowned lupus experts including transcripts from our annual Lupus Symposium.
Support
Support
Providing resource information and peer support, on-going communication and information sharing.
By partnering with St. Paul’s Hospital Lupus Clinic, initial treatment recommendations are available for newly diagnosed. For those who have lupus that is difficult to manage, consultative services are also available.
Assisting with the development of educational materials, as needed for Outreach programs.
Liaising with physicians, specialists and other health care professionals to develop an information network.
Awareness
Research
Research
Providing funding support for research initiatives locally and nationally.
Since 2007 the BC Lupus Society has funded lupus research through the sponsorship of our BC Lupus Research Scholar, Dr. Antonio Aviña-Zubieta, working out of Arthritis Research Canada in Vancouver.
Ongoing support of national research initiatives through Canadian Network for Improved Outcomes in SLE (CaNIOS).
Awareness
Spreading awareness around Lupus Awareness Month in May with the educational lupus symposium, and Fall awareness campaigns that are highlighted by Walk Your Way for Lupus and further supported by advertising campaigns in the various news media.
Developing links with the medical community in general, as well as the Division of Rheumatology.